Last Updated on May 29, 2025 by Brenda

Listen to the Podcast Here: Endo Exposed

Endometriosis. It’s a condition that affects an estimated 10% of women of reproductive age, yet it remains shrouded in misunderstanding and misdiagnosis. In our latest podcast episode, we had the privilege of speaking with Sarah Bowman, a passionate advocate and community member, who shared her personal journey with endometriosis and offered invaluable insights into this often-debilitating condition.

Endometriosis occurs when tissue similar to the lining of the uterus (endometrium) grows outside of the uterus, most commonly in the pelvic area.  The tissue functions the same way as uterine tissue growing and sluffing off monthly.  This tissue often develops scar tissue causing continuing pain in the area. This misplaced tissue can cause a range of symptoms, including:

• Severe menstrual pain
• Heavy bleeding
• Bloating (endo belly)
• Bowel issues
• Pain during intercourse

One of the biggest hurdles in endometriosis management is diagnosis. Because the symptoms can mimic other conditions and because the tissue is hard to see on standard imaging, many women endure years of pain before receiving a diagnosis.  It is often difficult to find a health care provider that has experience with endometriosis so they try to cure other illnesses instead.

Sarah shared her personal experience, highlighting the importance of self-advocacy. She emphasized that “normal” period pain should not be debilitating and that women should not hesitate to seek second opinions and find providers who listen and believe them.

While there is no cure for endometriosis, there are treatments available to manage symptoms, including:

• Excision surgery (laparoscopy) to remove scar tissue
• Hormone therapy (e.g., progesterone birth control pills)
• Pain management strategies (e.g., heating pads, warm baths)

Endometriosis is a common but often misunderstood condition.  Severe menstrual pain is not normal.  Find a trusted friend and compare notes if you feel your menstrual pain is abnormal.  Self-advocacy is crucial for diagnosis and treatment.  There are support and resources are available. 

Resources for Support:

• Nancy’s Nook: A database of endometriosis specialists.
• Endometriosis Warriors (Facebook group): A supportive online community.